Noisy Night
Apparently, Mother Nature decided Spring was rolling in too quietly. Last night the window screens were rattling in the wind and I could hear the sound of the movement of the boughs and limbs of the landscape plants. And before rising this morning, there was a natural alarm being repeated loudly as thunder clapped repeatedly. .this equinoctial announcement couldn't be ignored. Now it is midday and I am still awaiting the wet part of the change, we desperately need that element here in our drought stricken desert of the Valley of the Sun. It has been mercurial all morning, full sunshine with bright areas in the sky and now very clouded and gloomy dark with renewed sound effects.
The political news is as unsettled as the weather. The Edwards, John and Elizabeth, have their own storm to deal with, she has been told that her previous primary breast cancer has metastized to a rib bone. To show how quickly circumstances move in the midst of a too long campaign season, it seemed to require an almost instant decision for John to continue his desire to become president. Although perhaps this always being a possibility when one faces cancer.......the scenario might have been considered before he started this second campaign effort. It certainly adds a dimension that is probably going to be unique.
There will be interest I think in how this will play out in the "anything goes" type of political climate we live in. I have already heard one Republican strategist proclaiming on CNN that this won't insulate them from attack politics. Ah America,,,,,,,,,,,nothing is sacred.
I examine my own feelings about them and this development. Yesterday when the news was broken that there was to be a news conference regarding Elizabeth's health, I speculated that if she were positive again that John would drop his campaign. So for speculation, I should have been more patient. They are remarkably resilient and strong indivuduals and even moreso as a couple. And my own life has had enough tragedy that I understand their attitudes. One is much better off reaching out and embracing life as fully as can be managed.
But there are many individuals out there in our society that do not have the means to deal in the same way with catastrophic disease states. I happen to be one of those- I am ten months into a regimen of treatment for a lung complex of diseases that are little known and for which the treatment doesn't have that high a success percentage. It requires 18 to 24 months of strong levels of three separate drugs taken every week and generally on a M-W-F schedule, which is termed intermittent therapy.The latest best numbers on incidence is 1.0 to 1.8 per 100,000. This is variously termed in the literature about it, as NTM, MAC, Mac-PD, or MAI. Many general practitioners, physician's assistants, and even pulmonary doctors have limited knowledge of it and even less experience. It can be misdiagnosed or overlooked for years. Commonly the patient already had an underlying lung disease that makes one vulnerable to the opportunistic "bugs" that are usually harmless to very healthy individuals. One of the pre-disposing lung conditions not widely known about either is bronchiectasis, of which there are also variations.
Recently in Wa DC there was a national conference - only the second, I believe, and it received little to none, as far as coverage by the media is concerned. This was initiated by a couple that are advocates and of whom, the woman is a patient. The husband also has created a website with message board, and focusing on medical/science sources for educating the public and the patient and caregivers. It can be found at http://ntminfo.org/
So the Edwards are not alone in their battle. I wonder what the number of individuals are wearing similar shoes, at least disease-wise.
graysmoke
The political news is as unsettled as the weather. The Edwards, John and Elizabeth, have their own storm to deal with, she has been told that her previous primary breast cancer has metastized to a rib bone. To show how quickly circumstances move in the midst of a too long campaign season, it seemed to require an almost instant decision for John to continue his desire to become president. Although perhaps this always being a possibility when one faces cancer.......the scenario might have been considered before he started this second campaign effort. It certainly adds a dimension that is probably going to be unique.
There will be interest I think in how this will play out in the "anything goes" type of political climate we live in. I have already heard one Republican strategist proclaiming on CNN that this won't insulate them from attack politics. Ah America,,,,,,,,,,,nothing is sacred.
I examine my own feelings about them and this development. Yesterday when the news was broken that there was to be a news conference regarding Elizabeth's health, I speculated that if she were positive again that John would drop his campaign. So for speculation, I should have been more patient. They are remarkably resilient and strong indivuduals and even moreso as a couple. And my own life has had enough tragedy that I understand their attitudes. One is much better off reaching out and embracing life as fully as can be managed.
But there are many individuals out there in our society that do not have the means to deal in the same way with catastrophic disease states. I happen to be one of those- I am ten months into a regimen of treatment for a lung complex of diseases that are little known and for which the treatment doesn't have that high a success percentage. It requires 18 to 24 months of strong levels of three separate drugs taken every week and generally on a M-W-F schedule, which is termed intermittent therapy.The latest best numbers on incidence is 1.0 to 1.8 per 100,000. This is variously termed in the literature about it, as NTM, MAC, Mac-PD, or MAI. Many general practitioners, physician's assistants, and even pulmonary doctors have limited knowledge of it and even less experience. It can be misdiagnosed or overlooked for years. Commonly the patient already had an underlying lung disease that makes one vulnerable to the opportunistic "bugs" that are usually harmless to very healthy individuals. One of the pre-disposing lung conditions not widely known about either is bronchiectasis, of which there are also variations.
Recently in Wa DC there was a national conference - only the second, I believe, and it received little to none, as far as coverage by the media is concerned. This was initiated by a couple that are advocates and of whom, the woman is a patient. The husband also has created a website with message board, and focusing on medical/science sources for educating the public and the patient and caregivers. It can be found at http://ntminfo.org/
So the Edwards are not alone in their battle. I wonder what the number of individuals are wearing similar shoes, at least disease-wise.
graysmoke

